Missy's Moments

Journal entry by  Missy Eagen  —  5/24/2016 Brielle is officially sporting a pacemaker. She did great in surgery and is settled into the CardiacICU. Hopefully her stay there will be brief and the recovery from this surgery uneventful.  Thanks for the prayers! (taken from cb)

Journal entry by  Missy Eagen  —  5/14/2016 The NICU days continue on for Brielle- she is 16 weeks 3 days now, she weighs 6lbs 7oz. Brielle continues to use a CPAP which is different than the last update when she was still intubated. Today they unfortunately had to place another line in as her heart is not pacing itself well. The line would allow for a heart medication to be given if needed. There is talk again of a pacemaker which would correct her heart rhythm but require intubation again with another surgery. The surgery is far less invasive than the first heart surgery but at the end of the day it's another surgery. I'm sure the weekend will give cardiology time to make a decision unless of course Brielle in true Brielle fashion makes the decision for them. So we wait and cheer on the toughest little fighter we know! (taken from cb) heart

Journal entry by  Missy Eagen  —  4/30/2016 On Thursday Brielle was moved off the Cardiac ICU and moved back to the NICU. She was 100 days old yesterday and She's 5lbs 1oz now! She's still on the ventilator and that will just take time as it allows her lungs to heal. Today she was sporting a sweet bow and was having a good day. Not a whole lot to report as she continues to grow stronger. We all look forward to some snuggles when she is off the ventilator! (taken from cb) heart

Journal entry by  Missy Eagen  —  4/23/2016 Miss Brielle celebrated her due date this week and she's already 3 months old! Wednesday was the day they were able to close her chest and now we are working on shedding some of the tubes and medications. Everyday meds are getting weaned and tubes will be removed as tolerated. Brielle is more awake and it's so good to see her eyes looking bright and open. Healing is moving forward and probably the biggest prayer request is for her lungs to adjust to a properly working heart and to recover from surgery. Will update again when the ventilator is gone.  As always thank you for your love and prayers- this girl is our superstar 🌟

Journal entry by  Missy Eagen  —  4/19/2016 Grandpa Shawn shared this on Facebook today. This morning Brielle was winking at me and I didn't understand. She was scheduled for surgery for her pacemaker this morning. We have all come to accept that she has a permanent and complete heart block requiring a permanent pacemaker. She was also struggling with breathing this morning which is even scarier going in to surgery. I was sitting in the chair praying for her to find the strength to overcome yet another challenge as she struggled on her ventilator. At that moment the cardiology team came in for her final pre-surgery prep. They turned off her temporary pacemaker for one last test. To everyone's amazement, she suddenly developed her own rhythm and her heart worked normally. As of this moment she is off the temporary pacemaker and her heart is working on its own. Her breathing and oxygen levels have also stabilized. I guess she had a reason to be winking... POWER OF PR...

Journal entry by  Missy Eagen  —  4/13/2016 This last week has felt so long. I long for Brielle to be past this part of her journey. I know any of us would take this from her if we could. When Brielle first entered the world the NICU terrified me, I messaged friends that had preemies and said "what does all this mean, is this normal, how did you get through this?" Can I just tell you that we long for the comfort of the NICU again- really puts this into perspective as suddenly it doesn't seem scary but a place of safety. She is a tiny baby who needs to be cuddled and grow. Sweet Brielle is a fighter- she is amazing and I can't wait for days of cuddles. Tonight when I peeked in on her she opened her eyes a bit and looked around as if she was saying "what is going on in here?!" I prayed over her and rubbed the parts of her body that don't have monitors or tubes or lines. I am grateful she will never remember these days. Tomorrow they will do another...

Journal entry by  Missy Eagen  —  4/16/2016 Miss Brielle had another "wash out" on Thursday as planned, that went well but for whatever reason Dr. Said held off in the full closure on Friday. The plan right now is Tuesday, along with the pacemaker being placed. She has had some uneventful days, she continues to rest and heal. No news is good news.... Or stable news... Praying Tuesday is the day. (taken from cb)