Missy's Moments

Brielle has had a big week preparing for yet another big day. Last Friday there was a care conference regarding Brielle's care both while she is in the hospital and long term cares at home. The first step to getting Brielle closer to home (and when I say closer I mean not for months) is a procedure in which she will have a tracheotomy. A trach is done on babies that are going to need long term respiratory support. The trach will allow for Miss B to have all that "stuff" out her mouth, off of her face and it will plain just be more comfortable for her. The hope is that the trach will also allow for her to be weaned off all the sedation medications that she is on. The vent that she currently has is not comfortable and when she wakes to much she gets agitated and it causes her oxygen needs to rise which in turn causes her O2 saturation levels to drop. Of course the other benefit of coming off the sedation is giving her the opportunity to experience more developmentally appro...

Yesterday as I was reflecting on the 5 months Brielle has been with us I remembered I had this diaper from her first days in the NICU- it was big on her when she was born! Sweet girl has grown so much. Hebrews 11:1 Now faith is confidence in what we hope for and assurance about what we do not see.

Beautiful girl is 5 months old today!! ♡♡♡

Brielle was a bit restless early in the day but a few full diapers later and she's all comfy and sleeping peacefully now. She looked so sweet when I stopped up and she has a new bear friend in her crib that vibrates. She loves for her bottom to be patted so the nurse said she used a blanket to get that bear in position to "pat" away! (taken from fb)

Brielle Ann... the most sweet, tough, adorable little girl ever! I can't believe you will be 5 months old in 3 days! Everyday you amaze me. Love you like crazy! Today was a great day for Miss Brielle

Journal entry by  Missy Eagen  —  5/24/2016 Brielle is officially sporting a pacemaker. She did great in surgery and is settled into the CardiacICU. Hopefully her stay there will be brief and the recovery from this surgery uneventful.  Thanks for the prayers! (taken from cb)

Journal entry by  Missy Eagen  —  5/14/2016 The NICU days continue on for Brielle- she is 16 weeks 3 days now, she weighs 6lbs 7oz. Brielle continues to use a CPAP which is different than the last update when she was still intubated. Today they unfortunately had to place another line in as her heart is not pacing itself well. The line would allow for a heart medication to be given if needed. There is talk again of a pacemaker which would correct her heart rhythm but require intubation again with another surgery. The surgery is far less invasive than the first heart surgery but at the end of the day it's another surgery. I'm sure the weekend will give cardiology time to make a decision unless of course Brielle in true Brielle fashion makes the decision for them. So we wait and cheer on the toughest little fighter we know! (taken from cb) heart