Missy's Moments

Journal entry by Missy Eagen — 9/22/2016 We have been using Facebook as our means of providing updates. Over the last couple of days at least 2 friends have mentioned this was their source to hear how Brielle is doing. As I was reading the journals from those first months I was reminded once again of the strength Brielle showed, she hasn't lost the fight but her body could no longer keep up with it. Brielle is now with us in our hearts, we have etched her soft cheeks and fun looks in our minds and she will missed until that day in heaven we are reunited with her. ❤️️ (taken from cb)

Brielle Ann Heyer entered our hearts even before she entered the world on January 20,2016. She taught us very early on there was "our time" and then there was "Brielle time". What started as one of the scariest days turned into the first day of the fiercest most blessed journey we've been honored to take. Jordan and Beca were reminded again and again that Brielle was strong and determined and through her strength they became stronger. When days turned into months Brielle often brought her family together in the walls of a place that became all to familiar. Among those walls there are angels with skin, they loved Brielle when we couldn't, they loved on her, they loved on us, their care was never ending even after the end. Just after midnight September 21, 2016 at 8 months old Brielle felt fresh air, she got to breath it in as Jesus completely healed her. In the presence of all those who just wanted one thing... for Brielle to know she was loved. Brielle wil...

Our dearest Brielle- how do we even explain the ways you've impacted our lives. Sweet girl you are healed and safe in the arms of Jesus. We are heartbroken but it is only because of the great love you brought to us all. You are forever in our hearts. Brielle entered into the arms of Jesus at 12:39am, September 21st surrounded by family and in the arms of her Mommy and Daddy. 💕

Brielle has had a big week preparing for yet another big day. Last Friday there was a care conference regarding Brielle's care both while she is in the hospital and long term cares at home. The first step to getting Brielle closer to home (and when I say closer I mean not for months) is a procedure in which she will have a tracheotomy. A trach is done on babies that are going to need long term respiratory support. The trach will allow for Miss B to have all that "stuff" out her mouth, off of her face and it will plain just be more comfortable for her. The hope is that the trach will also allow for her to be weaned off all the sedation medications that she is on. The vent that she currently has is not comfortable and when she wakes to much she gets agitated and it causes her oxygen needs to rise which in turn causes her O2 saturation levels to drop. Of course the other benefit of coming off the sedation is giving her the opportunity to experience more developmentally appro...

Yesterday as I was reflecting on the 5 months Brielle has been with us I remembered I had this diaper from her first days in the NICU- it was big on her when she was born! Sweet girl has grown so much. Hebrews 11:1 Now faith is confidence in what we hope for and assurance about what we do not see.

Beautiful girl is 5 months old today!! ♡♡♡

Brielle was a bit restless early in the day but a few full diapers later and she's all comfy and sleeping peacefully now. She looked so sweet when I stopped up and she has a new bear friend in her crib that vibrates. She loves for her bottom to be patted so the nurse said she used a blanket to get that bear in position to "pat" away! (taken from fb)