Missy's Moments

PICC line out- check Clothes on- check Room packed up- check cute pose in car seat leaving (added bonus wave)- check

Sunday was a pretty low-key day for little man- He ate Pedilyte, it stayed down, he ate Pedilyte mixed with soy formula (stopping milk based just to make sure), it stayed down, ate some more it stayed down. Around 5 he ate 2 1/2 ounces of formula….. we held our breath….. it stayed down. Around 9:00 he ate again- around 10 it all came back up His expression says it all- His PICC line was capped later this afternoon, It’s still in but not hooked up to anything. My guess is the docs will want to make sure he’s keeping enough down to maintain his weight and stay hydrated. Home tomorrow? We’d like nothing more, but only when the time is right. It’s progress

I got some extra snuggle time with Jack during the wee hours of the morning today. Kayla slept and slept and slept while I had Jack duty. I tell ya you really have to twist my arm “where are my heated blankets?!” Wonder how Kayla is going to come up with heated blankets on demand once they are home… Last night (Friday) they tried to give little man some formula to which his tummy said “no thank you” in a pukey kind of way. So back to Pedilyte. Pedilyte stayed put about an ounce at a time all day on Saturday. He did great at 30ml and at 45ml but when they moved him to 60ml (2oz) His tummy again “ummmm NO”. In fact Grandma caught that one in my short 1/2 visit tonight. Not sure where they go from there. When I left the nurse was going to call the doc. Speaking of nurses- WOW – the nurses Jack has had have been wonderful and kind. There has really only been one that seemed to know it all want to intervene when things didn’t look by the book. For example – we sleep with Jack i...

Jack Jack Attack Our sweet friend Marquia has called Jack “Jack Jack Attack” since about the day Kayla and Travis knew he was going to be a Jack. Well attacked I’m sure poor Jack has felt this week but God willing over the weekend Jack will start to wow those around him by his stunning charm (I think he gets that from me) and his strong little body turning this thing around. I’m not one that believes in “jinxing” things so I will brag up the fact that he’s had a WHOLE OUNCE of Pedilyte in him now for 3 hours. I’m quite sure that is a record- the best part about that is even if it does end in a puke session the longer it’s in his tummy the more that can move through- even if it’s a tiny amount, it’s still more than nothing. Jack has even more monitors on him today as they have started a new medicine and if it has no adverse side affects (irregular heart beats- you know just that ) he’ll be on this medicine for 4-6 weeks to get that stubborn Pyloric Stenosis to heal. I guess thi...

In case you missed the post about why Jack is had surgery click HERE first: Jack did great in surgery- it was a long, emotional morning but everyone was so sweet and helpful and so very understanding. Kayla and I in true to who we are cried one minute and then laughed the next. My favorite line in pre-op was this one “ and I was worried about a cold” … Kayla Poor girl! She has done a great job keeping it together and knowing Jack needs her right now. I am so proud of her for putting aside her fears of unknowns and just stepping into a role that no Mom wants to step into. This is how it’s gone down since Monday: Monday afternoon- got up to room out of surgery around 1:00- Jack did great and there was no reason to expect problems. 4:00 first feed 15ml (1/2 oz) 7:00 feed 15 ml (both successful) 10:00 feed 30 ml (1oz) 1:00am feed 45 ml (1 1/2 oz) both successful) 4:00 feed 60 ml (2oz) seemed to be going alright until I heard what I thought was someone throwing a bucket of wat...

Little man’s study results came back and there is nothing glaring- his esophagus looks normal- there was no reflux that showed. Basically Jack’s stomach isn’t emptying as fast as it should- in fact it sounded like it’s not even close to how fast it should empty. The Pyloric muscle is opening and passing the food through that is getting there so that means the procedure did what it should. In really professional medical terms his stomach is “pissed off”. Jack went back to the OR around 3:30 to have a PICC line placed. The benefits to this is he will start getting TPN feedings to give his body what it needs nutritionally. The feedings are administered with less risk in a PICC line.There will be no more pokes as everything then need can be accessed right there. We’ll even be able to put clothes on him as he’ll have less “stuff” on him. At 5:45 he just came back to the room. The procedure went well. When we got up there the Doc came in to introduce himself and I knew him. I’ve had one o...

well let me just start at what we believe to be the beginning…. Jack is a pretty easy going baby. Seems as if the only thing Kayla’s little man has struggled with is eating. All seemed well with the world and just like any child in our family Jack figured out eating is a good thing and once that happened he seemed to do great for Kayla- 3-4oz every 3 to 3 1/2 hours this last week. Last Tuesday he weighed in 9lbs and concerns about weight gain were part of his not so distant past. On Wed and especially Thursday Jack was really fussy for Kayla- we figured it was because of change in his formula from Enfamil to Similac. She switched him because of WIC. Anyhoo after a call to his ped on Friday it was decided he should go to the Similac Sensitive and things seemed to be going better. He’s spitting up seemed to increase a bit but then Friday night he slept well and feed well. Saturday his spitting up seemed to increase a bit more and at one point Kayla even mentioned being a bit concern...