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Journal entry by Jordan Heyer — 4/12/2016

Hello,

Yesterday Brielle was back in the operating room to replace a couple lines and clean things out. Doc said everything looks good and they are pleased with her progress. There biggest focus right now is getting some of the fluid off of her because she is retaining so much and it leaves them no choice but to leave her open to relieve the pressure on her heart and lungs.

This morning that continues to be the goal, giving her meds to help to pee those extra fluids out. Last night her left lung collapsed while they were turning and suctioning her. It's always hard to here that as those tiny lungs had to work so hard to get where they where at and now it feels like she has gone backwards a bit. In a sense she has but it's a balancing act- the heart repair became necessary to go forward. I think we all feel a bit helpless - and rightfully so. Brielle continues to give this her all and inspire us to push forward on this journey.

A pacemaker is still a possibility and hopefully tomorrow or Thursday Dr. Said will give the go ahead to close her chest and have further insight about the pacemaker. Her leg continues to look better, the clot hasn't worsened.


We will make sure and let you know if anything changes- this is such a great tool and we continue to covet your prayers!

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